Uppercase Woman

Scarred Hands

The Sunday after Easter is often the time, in Christian churches, when the story of doubting Thomas is told. If you are like me and are either a really shitty Christian or not a Christian at all you may not know that the phrase "doubting Thomas" comes from the story in the bible where the apostle Thomas refuses to believe that Jesus has risen from the dead until he, personally, "sees the wounds in his hands and touches the wound in his side." Naturally, as it works out, Jesus shows up yet again and the lucky bastard does get his proof and is gently admonished by Jesus who says, "Blessed are those who have not seen and yet still believe."

Of course, this is where the rest of us are. We are the ones who have not seen, whether it's Jesus or whatever form of God or God-like spirit you want to believe in. Imagine how much easier it would be to believe? It seems to me that the apostles had it rather easy, eh?

I've been a pretty strong doubting Thomas since the boys died. Worse, I've been all "Yeah, God might exist but he doesn't love ME." It's been an uphill battle changing my own mind about this the last few years. My minister on Sunday closed his sermon with a story that touched me profoundly. He told about a young boy living on the frontier with his grandmother, and how one night their house caught fire. Because it was a frontier town, there wasn't much of a fire department, so although the grandmother tried to rescue the boy on the second floor, she was overcome by smoke and perished on the first floor. The boy was upstairs yelling for help as a crowd gathered, not knowing what to do. Finally, a man in the crowd pushed his way forward and began climbing up the iron drainpipe to rescue the boy. The drainpipe, of course, was searing hot from the fire, but the man managed to get into the room, put the boy on his back, and climb back down while the crowd cheered.

After the fire burned out, and things had settled down, a town meeting was called to decide where the boy would live. The whole town came to see to the boy's fate. A farmer stepped forward, and said, "I'll take the boy; I can teach him a valuable trade!" Everyone nodded with approval. Then the town's teacher stood up and she said, "He can live with me; I'll make sure he gets a wonderful education!" More heads nodded. The town's banker stood up self-importantly and said, "I'll make sure he lives in the largest house in town!" Everyone seemed to think that was splendid.

Finally, the meeting leader asked if there was anyone else. There was a pause, and then, from the back of the room a man stood up and said, "I can't offer much. I can't teach a trade, or provide a big house or a great education. All I can offer is my love." Then he pulled his hands out of his coat pockets and showed the scars covering them and of course it was the man that had climbed the drainpipe and rescued the boy. The boy ran into his waiting arms, and the meeting was over, because the decision had been made.

...

This story was, of course, compared to Jesus. My minister compared the burns on the man's hands to the scars from Jesus being nailed to the cross. I must confess, while I remain steadfast in my refusal to fully succumb to the allure of Jesus-ness (Jesus-ocity?), I was moved. Deeply moved, and deeply humbled.

I realized that God doesn't promise us much; not big houses, not great educations, not even the rescue of our loved grandmothers that burn to death below us--or, if you will, the loss of our twin boys. But God did sacrifice something--I'm not sure what (Christianity says God sacrificed his son; interesting parallel there, no?) to bring us that love.

Oh, it's been such a long time since I could feel that so clearly.

I hope I'm telling this right. It's so hard to communicate it effectively. I've been trying to impart a tiny piece of this truth, or maybe this hope, to our friend Fred (remember Fred? the guy from my church that was working for us?) who is continuing to struggle. He's not struggling so much with his sobriety these days, but that's only because he has no money to buy drugs with.

I've been trying to explain to him the idea of pride, and the idea of humility. I've had some good lessons in humility lately, such as my unattractive reaction to the woman that attacked me last week (respond, don't react--I'll file that one away), and the gentleman that took me aside at one of my meetings and asked me to share more kindly about my husband (ack), among others. For me, my spiritual journey is a constant battle of humility and pride.

Fred's battle with pride seems unlikely, considering that he's homeless. He was kicked out of living at the church (for good reasons I won't get into here). He briefly went into a rehab, but left after a few weeks. He recently was offered a dishwashing job but had a communication issue with the boss (primarily because he doesn't have a phone and uses ours) and took that as a reason to not take the job), and actually said he was better off sitting outside on a bench than washing dishes.

I got so angry with him. When I told him to practice some humility, what he hears is he has to eat shit. When the jobs he wants won't hire him, he says to me, "Do I have a sign on my forehead?" and I think, yes, Fred, you do, you have one that says, I won't take any shit and that make bosses not want to hire you. He cannot see that the situation he's in is one of his own making and that he has to bow his head and act humbly if he wants his life to change. Even though the only time he eats is when he's here (I just found this out yesterday, and it makes my heart hurt). Even though he gets maybe five hours of sleep a night at the shelter.

He cannot see God's love. He does not see the scarred hands. All he sees is the lack of the nice house, and the good education, and the job. He only sees deprivation. He refuses to see the abundance, although it's hard to blame him--it's got to be difficult to see abundance when you only eat four or five times a week and you are living on the street.

I do not know how to give this to him. I do not know how to impart humility. I do not know how to give the gift I've been given--the ability to see past all the pain, and instead see the joy. I have been given a great gift! I have such an amazing life, and somehow, after all my railing against it, all my self-pitying bullshit, I still have God's love. What a wonder.

But no matter what I do, I cannot take Fred's face and force it into the light. I do not see good things for him right now. I do not want to withdraw my helping hand, yet I do not know how much more I can do. He sees our helping hand withdrawing and it only makes him more bitter, more sure that God has rejected him.

It's hard work, being the only tenuous connection someone has to God. Especially when you aren't sure if that is what you are actually doing; if instead, what you might be doing is helping someone continue to tread water when they should actually be swimming to shore.

But I digress. I wanted this to be a happy post about how I felt so sure that I could once again feel God's love; and it is, and I do. Oh man, I really, really do. But that makes it all the more clear that some people don't feel that same love, and that hopelessness I feel from Fred is so stark and awful I can almost not bear it.

So, I'll ask a favor of you all. Pray for him. Think good thoughts for him. Because I think the end of this road for him is coming; either he will turn toward the light or he will turn toward, well... the place that addicts and alcoholics go when they don't: jails, institutions, death. But I hope he turns.

Because MAN is this a great place to be.

Unbalanced

So, I've been fuming ranting and raving stewing considering the whole last 48 hours on this blog.

I've been thinking about what would happen if any of the candidates actually DID come and read my blog post about losing Nicholas and Zachary and why it made me even more a believer in keeping abortion safe and legal (and rare). Then I started to think about how it would be if they read the comments, and then what I posted the next day, and I began to feel, well, frankly... embarrassed.

I'm not embarrassed by you guys--your comments were fine. I'm embarrassed at my behavior, at my cattiness, and at my reactionary response to the few people that asked me that simple question: why didn't I get a c-section? Of course the answer seems obvious, on the surface, either to those of us that have been through a similar situation, or have watched women like us go through it, or have a medical background, or have the Google MD that comes from years of infertility and loss.

But you know what? That does NOT describe everyone who reads this blog any more. There are a lot of people who come here who never had any trouble conceiving (and some who haven't even yet tried) who might honestly just not know the answer to that simple question: why didn't I have a c-section?

Instead of being calm and rational, and what I like to call the "Good Cecily" that handles discussions of the loss of my twins in a reasoned and sensible manner and just answers the question asked, I instead reacted to what I perceived to be the unasked questions or the unstated judgments. I didn't hear a simple "Why didn't you get a c-section?" I heard, "Bitch, why didn't you try harder to save your son's life and have a c-section?"

And you know what? NOBODY SAID THAT. I leaped to conclusions--many of us did--and instead of responding, I reacted. I got angry. I behaved badly. I engaged in an email debate that got ugly. And worse, when the person I engaged with extended what might have been an olive branch I could have possibly grasped onto (admittedly, it was a small branch, slightly wilted, without any actual leaves), instead of trying to bring peace to our discussion, I set the fucking branch on fire.

Additionally, I turned my back on the 110 supportive and positive comments I got and instead focused on the single commenter that was negative. How rotten is that? How ungrateful? How small minded and stupid?

I can't give a reasonable excuse for why this happened; I'd love to blame the hormones (seriously, this is the worst PMS I've ever experienced, and WHERE THE FUCK IS MY PERIOD ALREADY?) but that's not the only reason. In general lately I have been focusing on the dark and not able to see the light. I find that when my surface is scratched these days, what is underneath is bitterness and fear. I'm not letting love in. I'm not letting God in. I'm not letting the light in.

So I'm not sure I should be representing ANYONE to our candidates.

I want to apologize to those of you that asked a simple question and got shouted down. Please, forgive me for not just answering what you asked and instead assuming you were saying something else entirely (and even if that WAS what you were thinking, that is SO not my business). I hope you will continue to come here, and continue to ask questions, and continue to express your point of view even if it differs from mine and from many readers of this blog.

Now, please don't give me a bunch of accolades and tell me how awesome I am for saying this. I'm not big-hearted, or brave, or tolerant, even, particularly. Truth is, I'm mostly kind of an asshole and sometimes I let it show here in the blog. This was one of those times. I'm working on it.

Now. Back to the puppies.

Speaking to the Candidates About Choice On the Four Year Anniversary Of This Blog

Apparently, some folks who read this blog know some folks who know some folks and swear they can get this blog entry read by at least Obama, but I figured, why limit myself to just writing to Obama? I'm speaking to everyone who is running for President, including Ms. Clinton, and Mr. McCain (ok, maybe not Mr. Nader).

Why have I been appointed as someone to discuss the issue of choice? Because I'm the Internet Poster Girl For Partial Birth Abortion, that's why. It's not a title I'm proud of, but it's one I was saddled with a few years ago.

I'm not going to get into the whole story here. If you really want to read all about the harrowing details they start here. But you are all too busy running for president, so I'll give you the short version. In April of 2004 I was lucky enough to get pregnant with twin boys after undergoing in vitro treatment for male factor infertility (thanks to drugs my husband's mother took--DES, we suspect--while she was pregnant with him). We were on top of the world, although the pregnancy was difficult.

But a routine ultrasound on October 26--meant to be a time of great joy (my best friend came with us to the appointment--revealed terrible news: one of the twins had died, probably about a week before. We went from the ultrasound appointment to my obstetrician's office and were met with even more grim news. My weight had spiked up about 18 pounds, my blood pressure was soaring, and I had protein in my urine.

It turned out that I was in full-blown preeclampsia. I was admitted to the hospital immediately.

After that, everything happened very quickly. I was put on medication (magnesium sulfate) in an attempt to treat the preeclampsia and save the remaining twin until he reached outside-the-womb viability--a mere two weeks away (I was just over 22 weeks pregnant). But I got much worse overnight; my blood pressure couldn't be controlled, I had a massive headache and was vomiting uncontrollably. My kidneys shut down. I was moments away from seizures, coma, and death when the doctors came and told us the bad news: my remaining twin could not be saved. My pregnancy had to be terminated or both the baby and I would die.

You might, Mr. Obama and Mr. McCain, be able to imagine what it felt like to be my husband--to imagine being terrified of losing your children and your wife in one fell swoop. Ms. Clinton, you might be able to imagine lying in the hospital, so sick you barely feel any of what is happening, only knowing that the long-fought-for children you so desperately wanted are now both going to be dead.

Here's the part of the story where choice comes in. I could, of course, have gone through induced labor and delivered my tiny twins. But my blood pressure was hovering around 165/120 (often going higher), even with treatment. Can you imagine what labor would have done to my body with blood pressure that high? My doctor recommended, and I agreed, that I undergo the much less stressful intact dilation and extraction procedure--what the "pro-life" forces often like to call a "partial birth abortion." Of course, you being the smart and well-education politicians that you are know that there is NO medical procedure that is actually called a "partial birth abortion" so you know that there are several medical procedures that the "pro-life" movement put in that category, including the one that I had. Wait, I take that back--Mr. McCain, as you have been a staunch supporter of the Partial Birth Abortion ban you clearly were asleep in class when they discussed the actual procedures.

But I digress. My doctor refers to my procedure as the worst moment in his professional career. As I lay on the gurney, waiting for my procedure to start, I felt a gulf of grief and emptiness the like of which I have never known. I felt abandoned by God. I lay there, crying, alone, surrounded by doctors and nurses. You can't imagine the sadness.

I was lucky. Are you surprised that I would say that? I was lucky because the partial-birth abortion ban was not yet in effect in October of 2004. If it had been, I would have been forced to undergo labor and delivery, no matter the risks to my health, and I might right now be either dead or so brain damaged I would be unable to type this. I was additionally lucky because even though I live in Philadelphia, one of the largest cities in the country--a city, Mr. Obama and Ms. Clinton, you two will be visiting a great deal in the next month--my doctor happened to be only one of two doctors in this entire city that was willing and able to perform this life-saving medical procedure (although he can't now, of course, thanks to the ban being enacted--besides, he left Pennsylvania for New Jersey thanks to our crazy medical malpractice insurance crisis but that's another story).

So that's my story. For a year after that, I licked my wounds and missed my sons, Nicholas and Zachary. Eventually, I underwent a frozen embryo transfer and gave birth to my daughter Victoria, whose grinning face you see above this entry. I had problems with her delivery as well, so I will not be having other children, sadly.

I'm sure that you will find my story compelling; even the most hard-hearted and most staunch pro-lifers have. Many who came to my blog to question my decision have stayed and become friends. You know why? Because mine was an "acceptable" abortion. I'm not a 26 year old professional woman who doesn't want to derail her career by having a child and chooses to terminate a pregnancy. Or a teenage girl who got drunk and forgot to make the boy wear a condom. Or a harried mother of three who just can't imagine having a fourth child.

So it's easy to read my story and say, oh, yes, in case LIKE YOURS, abortion should be legal. But... when laws are passed that make it difficult for that teenage girl to get to exercise the right to control her own body--hey, I'm looking at you, Ms. Clinton, for not standing up harder against the parental notification laws--or for the professional woman to be able to fill a prescription, quietly, for RU486 at her local pharmacy so she can make her choice as well, or that harried mother to do the same thing--when those laws are passed, it's women like me that die. When you cut corners, you don't save babies lives. You kill women like me.

Let me say that again. When you compromise on abortion--when you sacrifice even the smallest corner of choice--you kill women like me. You create a culture of fear among doctors that puts lives like mine at risk.

So knock it off, will you? Fight to protect a woman's right to choose. I know, Ms. Clinton, that you believe in it enough to put it on the front page of your website, but your record isn't perfect. Mr. Obama, you do not discuss choice on your campaign page (although it's hosted on the Women for Obama page). Why not? Mr. McCain, for shame. Shame on you for promoting a law that is basically a warrant for my death. Come on.

I'm tired of writing about this. I am tired of being the Internet Poster Girl for Partial Birth Abortion, I assure you. It's not comfortable. By writing this post, I will get a new batch of pro-life people that will start telling me how I murdered my sons, how they could have lived (they never, ever, remember that one had already passed away) and some will threaten me. It happens every time I talk about this. Sometimes I just want to lie down and let someone else do this. But I won't. I don't know what it will take; perhaps a constitutional amendment protecting women's bodies?

Yeah. That might do it. Sigh. Like that will ever happen.

That Time of Year

I'm sure it hasn't escaped your notice that March 1st would have been Nicholas and Zachary's third birthday (had they been born on their due date, unlikely, of course, with twins). Last year and the year before I took note of the day and talked about how I was feeling about it. This year, while I noted the date to myself and Charlie, I found that I didn't have a strong urge to write a post about it. But I've spent the last ten days watching the early signs of spring arrive and being reminded of that spring after I'd lost the twins, how dead inside I felt, and I've wondered why I didn't feel much of a need to publicly mark the boy's birthday before now.

The grief is still there--of course--and it always will be. But now it's more like an arthritic ache rather than a sharp stabbing pain. And, frankly, with so much life around me in a the form of a frisky toddler, it is really difficult to spend a great deal of time on regret and sadness. Sometimes I see a little three year old boy and I feel a pang of what might of been, and other times... well, other times, like when Tori lies thrashing on the floor screaming because I made the mistake of singing along with Elmo during Sesame Street I must admit to feeling just a teeny, tiny, itsy bit of relief that I only have one toddler at time to cope with.

There, I said the terrible thought out loud. I'll admit it; as much as I loved the boys and wanted the boys desperately, I am very, very happy with how my life has turned out. Tori is perfect in every way, and exactly as much as I can manage.

But I still watch everyone's daffodils coming up and feel waves of sadness washing over me (for those that don't know, for Nicholas and Zachary's memorial service we had our friends plant daffodil bulbs since we lost them at the end of October but their due date was in March). I often wish things had turned out differently, that I'd had a normal pregnancy and things had gone just fine.

But then Tori runs to me and gives me a hug for no reason, and I can't imagine life without her. Life without Tori seems to me a life without sunshine. Maybe that was God's plan all along--a twisted, fucked up, demented plan, but one with a happy ending. Tori is the light of my life, and I'm lucky to have her.

Sleep safely, my little lost boys. Mommy misses you, but wishes you nothing but peace.

Dealing With The Grieving

Tertia recently got an email from someone that was similar to emails I get now and again; the email basically said, "I know someone just lost a baby/pregnancy/child/husband/sister, and I don't know how to approach them, but you lost your kids, so what do I do?" This inspired her to ask a bunch of us who've been through something similar to write about their experience with grief and dealing with other people. Here's my take.

Many of you were around during the worst of my grief and sadness in losing my sons when I was 22.5 weeks pregnant. What can I say about it? It completely fucking sucked. It was like having the rug pulled out from under me, like finding out that God was dead, and like, well, losing a fucking pregnancy nearly two thirds of the way through it (it was a twin pregnancy, so by twin pregnancy standards, I was two thirds through). There was such a sense of being fucking robbed; it was just awful.

But I got through it, and you know what? There is no way out but through. You can not beat the grief, hide from it, will it away, eat it away (although I sure tried), drink it away (would have loved to give that one a go, but I know better) or anything it away. Grief is just a process that has to be slogged through. It doesn't, in my experience, really ever end--it merely reaches a level of manageability and tolerability that means you can eventually get to a point where taking a deep breath doesn't make you cry and seeing a twin stroller doesn't feel like an actual blow to the chest.

I think that is one of the things that surprised me the most about grief; it is damned physical. I felt heavy, like my limbs all had 100-pound weights attached to them, and each memory or moment of painful sadness ranged from a dull throb to an actual needle-sharp stabbing agony. It is not all in our heads; grief permeates our cells and fills us  head to toe with dread and sadness. If it were a color, it would be gray shot through with the colors of flames, burning as much as it left dry, dead ash in it's place.

It is no longer as acute, the pain of losing my sons. And I now have much more perspective on my loss. This week I'm getting together with a woman who also loss twins on the anniversary of her loss. She delivered her sons and had to watch them die. I am so fucking blessed that I was spared that; she is so much stronger than I am to have endured it. Tertia is stronger than I am to have been able to hold Ben and lose him anyway, but a terrible part of me is horribly jealous that she got to see his face. That is what grief does to you; it makes you alternately gracious and kind, and also small and mean.

I'd had other losses before that hurt badly. My dear friend Web who killed himself, and my grandparents. Other losses of places and people that didn't involve death but were agonizing all the same. But nothing like the loss of my boys. Nothing like that. That was horrid.

Since Tertia led this charge to help people know how to offer comfort to the grieving, I will first say this. A lot of people said a lot of things to me after I lost the twins. By some miracle, I didn't kill any of them that said things like, "They are in a better place," or "God called them home." (Although I did say to someone, "Well, then, God's a selfish bastard.") The best one? "I'm so sorry." There is nothing else to say. If that was accompanied by a hug, or better, some chocolate, that was great.

The only other thing that someone told me was the Buddhist theory on stillborn and miscarried babies. I've mentioned it here multiple times, but it's so good, I'll say it again. The Buddhists believe that babies lost before they live are souls that have already taken many turns on this earth, and they have already endured all the suffering they needed to. They merely needed to touch on this earth one last time long enough to be loved, and they get to stop being reincarnated and go straight to Nirvana. I love that. I love the idea of my boys in Nirvana. I hope they are happy.

I think the biggest thing about grief is that when someone you love is experiencing it, you have to be PATIENT. Some days they will laugh, and then they will spend nine days in row where they won't put any clothes on or bathe. Just accept this. Don't cajole. Don't force. Don't go out and buy them antidepressants (unless they want them, or they are doing harm to themselves. Nine days without bathing is not harm). Let them BE. Or, if they want to get drunk and pick up guys, DON'T let them be. Go with them! Just allow them to go through the process they need to go through. I am so glad I had this blog; without it, I think my friends would have found me unbearable. I've been reading Patty's blog and she is struggling so hard with the holidays. It's painful to read her blog, but I won't turn away. She needs to be hear. That's what all people grieving need.  Or at least, that's what I needed.

Patience, love, kindness. Those seem to be the basic watchwords with grief (or, with all, actually). I am so grateful people did that for me.

I hope this helps people. I'm not an expert, at all. But when Tertia says jump, we jump. :)

Bad Anniversaries

I've been struggling to find things to blog about this week, which is odd, because I've been really energized with the recent changes I've made and the topics have been easy to find. Then I finally looked at the calendar today and realized... it's that time of year again.

Tomorrow marks the three year anniversary of the day I went to the doctor's office for a routine ultrasound and instead began heading down the terror-filled path that ended with the termination of my pregnancy with Nicholas and Zachary.

Last year I was feeling pretty sad about the anniversary, even though Tori was here and healthy. The year before that, I was newly pregnant and feeling pretty happy, even as I mourned the boys. I often feel their loss more acutely around the anniversary of their expected due date, but for some reason I am finding myself full of memories of that time, and what those few days were like.

I remember my complete and utter disconnect when I saw Dr. Mama's face once he saw the combined numbers of my blood pressure (170/120 or so), my urine protein (3+++), and my weight (up 20 pounds in less than two weeks). For god's sake, I asked him if I could stop and get lunch before I went to the hospital (we already knew at that point that one twin was dead, if you remember). I had severe preeclampsia, and I wanted LUNCH.

I remember the face of the nurse at the labor and delivery unit who kept trying to find the surviving boy's heartbeat.

I remember how sick I was once they gave me the magnesium sulfate. I remember all the equipment I had strapped to me; the blood pressure cuff that checked my pressure every 15 minutes; the pressure cuffs on each of my calves trying to keep my blood circulating; the monitor on the baby; the IV in the arm that didn't have the blood pressure cuff; the urinary catheter. I couldn't move, even when I had to throw up. I remember throwing up all over the lovely nurse I'd conned into giving me graham crackers and apple juice (boy, I bet she regretted that, eh?).

I remember how much my head hurt, how utterly and completely flattened I was by the pain, and how the morphine didn't touch it.

I remember that circle of doctors around the end of the bed at 7 am telling us that we'd have to terminate the pregnancy or I would die. I remember Charlie's face when he realized that not only had we lost a son, we were going to lose another one and maybe lose me too.

I don't remember this, but it haunts me now: the doctors discussing whether or not they could give me more morphine at 3 am because they were afraid I was going to begin having seizures any minute and they were afraid to depress my cardiovascular functions. It wasn't until it was all long over that I realized how close to dying I really was.

Most of all, I remember the moment that I stopped being disconnected and detached from what had happened. It was around 3 am EST and I was alone the night after the surgery (Charlie decided to finally spend a night at home) and it all just suddenly hit me. I was so sad, and so angry, and I felt so completely alone and I didn't have any idea who to call or talk to, so I called my friend Dave in Arizona (because it was not quite as late there, I reasoned) and how nice he was to me even though I woke him up (and his poor girlfriend).

It was such a difficult time. The weeks that followed the loss of Nicholas and Zachary were the worst I've ever endured.

This year it all feels very close and near, even though I have so much joy with Tori here. I think about her brothers often; they would be two and a half now. Can you imagine? Two boys in the terrible twos? And I think I'm tired NOW.

I wish I'd gotten a chance to know them. I wish things had been different.

But it's funny: now that I've got some distance on it, I can see things that I'm grateful for from the whole experience. I'm grateful that at the time I was able to have the medical procedure I needed (an intact dilation and extraction) without my doctor having to worry about going to jail. I'm grateful that such a huge and life altering loss gave me the ability to love Tori so completely and thoroughly, without reservation and fear. I am grateful that the loss of the boys taught me so much about tolerance and acceptance of other people's views.

As much as I miss them, their loss made me a better person and a better mother. What a gift they gave me! What a lucky woman I am!

Thank you, Nicholas and Zachary. Although you were here only a short time (not even six months), you had a huge impact on me and the people around me. Thank you. I love you both, and I miss you. Sleep well, baby boys.

______________________________________________________

*Edited to add that Charlie wrote a great post about this too.

**Also wanted to add that Patty (whose hubbie died last Monday) has started a blog. Go give her support, would you?

HEALTH vs. LIFE: Trying to clear things up

Healthy discussion going on over in the comments of my last post (person with fake emails and all caps not withstanding). But the core of the issue is the line between life and health and who gets to choose.

First off, let's talk about some different terms.

Technically, the term "Partial Birth Abortion" does not apply to any currently known and used medical procedure, as Maura stated in her comments. However, it is "assumed" that they are usually referring to the procedure known as a D&X.

D&X refers to a procedure called an Intact Dilation and Extraction. The benefits on this procedure are many, including the fact that having an intact fetus allows the family to view the remains if they choose. Remember, also, that this method is used often when a baby has already died. And, as Aurelia pointed out, "is quite often needed for babies with hydrocephalus or severe cranio-facial disabilities who cannot be delivered vaginally with their skull and brain intact."

According to this survey, this procedure is performed in 0.17% of all abortions. In other fucking words, HARDLY EVER.

D&E is a different procedure, a Dilation and Evacuation. This procedure is done between 12 and 20 weeks gestation. In this procedure, the fetus is usually, well, separated to allow for easier evacuation of the uterus. 11% of all abortions occur in the second trimester, according to the same study above.

I hope that clears up some confusion for folks about the terms.

Now, the problem with the ban is that the language is NOT CLEAR about which procedure is being banned. Part of the issue is the fact that there are many medical terms that fall into this category--this New York Times article refers to both "intact dilation and evacuations" AND "intact dilations and extractions". The line between the two procedures is very small--and doctors now face, as Maura mentioned, CRIMINAL prosecution for crossing that line--and sometimes they don't know what procedure a woman need until they've actually started the surgery.

Do you see the problem? They are taking a medical decision out of the hands of the people involved--the patient AND the doctor.

Personally, I do not know which procedure I had. At 22.5 weeks gestation (when my pregnancy ended--and that is based on my last menstrual period, remember, not the date of implantation, so the fetuses were really 20.5 week along) I was right on the line between trimesters. Plus the fact that there where two fetus (one barely alive, and one dead) could have impacted which surgery I had.

Other than having a medical termination, the options open to someone in my position are usually either a) emergency c-section, and b) induced delivery.

My doctor believed--given my particular circumstances--that it would be better for both my short term and long term health to not cut open my body if at all possible. My health was in a precarious state, and the option of a medical termination was the fastest, safest, and least complicated procedure to use. It also preserved the health of my uterus for future pregnancies.

Also, my doctor (you know, the man in the room with me, the one with a medical degree and my chart in hand? that guy) knew that inducing me, with my insanely high blood pressure, would be likely to cause me to have a stroke.

Please remember that even if my twins had both been alive, THEY WOULD NOT HAVE SURVIVED. Do not tell me they would have, because you are wrong. There have been NO DOCUMENTED CASES of babies born that early surviving--I don't care what pro-life websites you send me links to that say differently. THEY ARE LYING.

Trust me. Don't you think that I wanted those babies and would have done anything I could to save them? And don't you think that my doctor--who knew about my struggles to get pregnant and called the day of my surgery "the worst day of my professional career"--would have told me if that was possible?

Lastly, let's discuss, using me as an example, the difference between HEALTH and LIFE.

Where do you draw the line? Was my life actually at risk at the moment they chose to terminate the pregnancy? Well, my blood pressure was going higher and higher and they weren't able to get it under control with the medications they had available. My kidneys has begun to shut down and I'd stopped producing urine. But I was alive. I could have remained alive, possibly, under those circumstances for a while. Maybe they could have pushed it until I actually began to have seizures. Or maybe until I had a stroke. Or, maybe, since even after a stroke and having seizures I would have still been alive, maybe they would have to wait until after I felt into a coma. But wait! If I'm in a coma, I'm still alive, right? Even if my brain has been irreparably damaged, I'm still ALIVE. Right?

So, my point is, sure-- the "Partial Birth Abortion Ban" has a provision for the LIFE of the mother. But there is NO PROVISION FOR HER HEALTH. Or the health of her uterus, or her future children.

To sum it all up, if I hadn't had the procedure that I had, Nicholas, Zachary, me AND Tori would all be dead.

Got it?

Moving On

I know, I know, I've been a rotten blogger.But I'm straddling two jobs and feeling the strain a bit; my computer time has been dedicated to the new job and my work hours are filled with trying to clear projects before I leave there (in four weeks!).

But I haven't forgotten you guys, and I hope you'll be patient until things level out.

By the way, the other day Tori learned how to high-five AND how to bop her head to music--while I was at work. I've never been so sure that I was doing the right thing by quitting my job.

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After I wrote this post--and then read all of your comments--I had to do a lot of thinking. Was I really ready to find out what happened to the boys after my surgery? Did I really want to look at photos if they exist (being fully aware of what I would see--a 22 week fetus is not a full-term baby, after all)?

I'm still not sure, but I've taken some steps to provide myself with the option. With the help of a friend, I'm getting my hospital chart. Whatever questions remain after I look at that, I'll ask Dr. Mama directly.

I still feel sad, more sad than I've felt in a while about the boys. I feel very raw about it too, but that's good--I know that healing is hovering in the shadows. Or, I should say, further healing.

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Because I'm not the first woman (sadly, nor will I be the last) to lose a child before or shortly after birth, I'm happy to pass on a link to an amazing site that Kristie (no blog, Kristie?) told me about. Before you click on the link, be prepared: this is a site that connects families with photographers that are comfortable taking photographs of babies that have recently died. They are willing to come to the hospital, at short notice (and in the middle of the night), and give you mementos I wish I had (sort of--I wish I had lovely photographs of full-term infants, which wasn't an option for me, since the boys weren't full term. Actually, I wish the boys had been born healthy and full term, but you get what I mean).

The site is a wonderful resource, but there is a video clip on the front page that will have you bawling your eyes out. So be prepared. Here's the link.

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The last thing I'll say in this definitely-lacking-something post is, WHAT A DUMB ASS. But as someone I know pointed out to me, Don Imus says nasty-ass shit like that about women all the time. Would we have even heard about it if he hadn't also been racist? I would love to live in a world where an idiot like this man didn't have a job because no one wanted to listen to his vile hate filled jabbering.

You don't want to read this (and I don't want to write it)

I've been really haunted the last few days after watching Zinnea's film offering in the International Infertility Film Festival. After struggling with infertility, Zinnea finally got pregnant in 2004, only to discover that her daughter had a fatal birth defect called Congenital Diaphragmatic Hernia (CDH). Instead of terminating (as her doctors recommended), Zinnea and her husband decided to go to term. Mia Marvelle passed away six days after she was born.

In her film, Zinnea includes the incredibly private and deeply wrenching images of her holding her daughter and weeping. And photos of she and her husband holding their daughter after she's passed and saying goodbye.

After watching the film, I found myself gasping for air and sobbing inconsolably. This isn't a shock; many, many things have made me cry here on the internets. So many of us have suffered and lost, and I've cried right along with many of you.

But I couldn't stop thinking about those photos. I couldn't sleep that night; they kept drifting into my mind and I would start to cry again. The strength of my reaction took me by surprise.

It wasn't until about 3am that I finally figured it out.

I was jealous.

Every time I think I've done all the processing I need to do about losing the boys, I find a new area that I haven't dealt with yet. Of course I'm not jealous of the horrific loss they suffered; what I'm envious of is the fact that they got to see their baby, to hold her, and to say goodbye.

I've had inklings about this before. A few months ago I allowed myself to wonder what, exactly, had happened to Nicholas and Zachary's bodies. But as soon as I had the thought, I shut it down. I wasn't ready.

And I'm still not ready. I don't have any desire, whatsoever, to again probe the grief that surrounds the loss of my sons. There's a lot of shame there, and anger, and guilt. Oh, God, so much guilt. But God doesn't agree, apparently. I am supposed to deal with it.

Not long after I lost the boys, I expressed my rage and anger here in this blog. I hurt some people in my anger and one person pointed out that others had lost "live babies" after all, so I shouldn't be---well, honestly, I'm not sure what I wasn't supposed to be. I guess I was being reminded to keep my grief in perspective. But I still feel pissed off that things went the way they went. I still feel ripped off. I feel like the randomness of the universe, the luck of the draw, or worse, "God's plan" doesn't make any fucking sense and is completely and utterly unfair. I don't care what others suffered. My "lot" in relation to the boys SUCKED.

Thinking about the day we lost the boys now, all I can remember is that it all happened so fucking fast. Remember, I went from going in for a routine anatomy scan to having to terminate the pregnancy in less than 24 hours. I was so ill that I didn't get to participate much in the decision making process. No one at the hospital said to me, "Yes, delivering your sons will be more risky, but at least you'll get to see them and hold them and say goodbye." No one said, "Do you want to make arrangements with a funeral home?"

Instead, they just said, "You are dying." This was all Charlie could hear--that not only was one son dead, and the other was dying, but so was his wife. No one came to him and said, "Have you thought about what you want done with their bodies?" All they said was "We have to terminate. NOW."

We were alone, afraid, and sick. Options weren't offered. I was the patient, not the boys. No consideration was made for Nicholas and Zachary.

Instead of getting to say goodbye, to look at their faces, I was just knocked out and the boys stripped from my body. I'm left with the shame and guilt of--God forgive me--treating my sons like standard medical waste. My sons. My boys.

I wish, oh, how I wish, that I'd done things differently. That I'd gotten them cremated and been able to scatter their tiny ashes. That even if it would have been awful, the worst pain in the universe, that I would have been able to see their faces just once.

I wonder if Zinnea sees reflections of Mia's face in her (living) daughter Naima? I often wonder if the boys would have looked like Tori does; if they would have scrunched up their noses like I do when I laugh, like she does, or if they would instead use their eyebrows like Charlie does. I know I wouldn't have been able to tell that from their tiny and unfinished faces at only 22 weeks gestation. But, oh, god. I wish I'd tried.

I know I'm one of the lucky ones, now. I do have a living child. So many of us don't. But this--this sadness--will never leave me, I'm afraid.

It's never over, is it? Even while I was sitting on my front porch last night, holding Tori, watching her extend her hand as she tried to reach up to the wind chimes Anne gave us, I felt the deep wound that the loss of the boys caused. Even while I find myself sinking deeper and deeper into joy because of Tori's magnificence, I still find myself the owner of a bruised and battered heart.

I guess I always will.

The Road Not Traveled

Today I visited my friend Zenzi at the hospital. She delivered her babies by c-section on Monday, but I hadn't been able to reach her and get the news (she's a popular lady, and her phone was busy! Sorry I didn't let you know sooner).

She delivered two baby boys!

One baby is just a tiny thing at 2 pounds 8 oz (don't quote me on these weights--I should have written them down). But his APGAR scores weren't too bad, and shockingly, he's breathing just fine on his own. He only has a feeding tube and is under the lights to treat mild jaundice.

The other baby is a much healthier weight at over 5 pounds, but he's having more difficulty breathing. After a couple of days on the CPAP machine he's doing better with just the little nasal plugs now. His jaundice is worse too, but he's doing pretty well overall.

The twin-to-twin transfusion syndrome may have been a misdiagnosis. She doesn't know; they've sent the placenta out for testing and hopefully that will provide more information soon.

During most of our visit today I watched her struggle with the breast pump. I kept telling her it would get easier, but we all know how fucking frustrating it is when you first start. She's finally producing enough for them to eat now, but that's mostly because they are only eating 4-6 ml at a time. I also brought in some milk for her to use (most people bring flowers; me, I bring breast milk) but they won't let her use donated milk at the hospital. She's going to take it home with her for a back up later in case her production doesn't get any better. I'm betting, however, that it's going to be fine--she started leaking when I was leaving which bodes well for her milk supply.

After the pumping fun, we walked over to the NICU (ok, it was up a floor, so we used an elevator too) and I braced myself.

I've never been in a NICU. Sure, I've seen all of your photos from the NICU and all the TV shows about it. But actually walking in is a different story. Especially to see twin boys. Especially so close to Nicholas and Zachary's due date.

I've been thinking a lot lately about how things went with that pregnancy, especially ever since the story of the 21-week survivor broke. I was 22.5 weeks pregnant when I lost the last surviving twin and I was told that even if that baby wasn't already in serious distress (which Charlie tells me he was--I actually didn't remember that at all until we discussed it the other day), there was no hope for survival.

But sometimes, of course, I can't help but wonder. What if we gave it a few more days? What if I'd chosen to deliver and we went ahead and tried to save him? Would we have been the proud parents of the youngest survivor ever?

It doesn't do any good, of course, for me to spend that much time thinking about it. The boys are gone. But... you know. I go there. I'm human.

So this is what I was thinking about when I walked in to the NICU with Zenzi.

Of course, when I saw her babies, I thought about my son. I wondered how it would have been to have to go through the NICU stay. How stressful. How hard it would be to bond with the baby behind all that plastic. How exhausting and debilitating it would have been to go home without my baby every day.

But then I saw her face light up when she introduced her sons to me. And I watched her discuss their condition with the nurse, and gently reach out and touch her son's hand.

I could have done it. I know I could. But part of me is so fucking grateful that I didn't have to.

Anyway. Without much more ado, please welcome to the world two of the cutest little boys you ever did see...

Tiny little August:

and his slightly more robust brother Miles:

They both totally have her nose. Thank you all for keeping Zenzi and her boys in your prayers. No need to stop now, right? Let's keep those prayers coming until they all three come home.